Tuesday, May 20, 2025

It's Not Hysteria: Everything You Need to Know About Your Reproductive Health

It's Not Hysteria: Everything You Need to Know About Your Reproductive Health By Karen Tang

This book was amazing and what every medical book for general audiences should be. The book was well organized and made me feel not so out of sorts. Even as a full fledged adult woman it had information I was not familiar with and helped to normalize my experiences. I wish I would have had this book as a young adult fresh out of high school. It would have been a big help. I think that this is also an important book for any male that has women as a loved one. I think that anytime I have friends getting married forward I will give the groom a copy of this book. I think women throughout history have been living with partners that don't understand their bodily experience and this book could really help. If nothing else it may open up lines of dialog. This is one book that I would highly recommend. 5 stars out of 5 or a A+. 

Picture From: https://www.goodreads.com/book/show/195790756-it-s-not-hysteria

Friday, May 16, 2025

VA Continues to Fail Veterans and Employees


The article "VA Reinstates Mandatory Overtime To Address 200,000-Claim Backlog" just came out (link at bottom). This is just one part of the VA that doesn't have the needed staff to serve our veterans. Mandatory overtime has been going on for awhile in different departments, like community care. Not only are veterans actively being hurt by the current understaffed, but employees are suffering burn out with their work life balance being massively disrupted. 

Here's a specific example of how these staffing issues are negatively impacting veterans. I personally know a veteran who 2 days ago was told that they couldn't get a needed sleep study down until October...6 months away. This veteran has already been diagnosed with sleep apnea, has other major health issues along with symptoms that are being impacted by the sleep issues, and they still can't get help faster. Sleep issues can have massive impacts on a person's overall health and can lead to death untreated. So yes, this means that the VA could even be killing veterans due to lack of service. Something massive needs to be done asap and our current government does not have the knowledge or caring to fix it.

https://federalnewsnetwork.com/workforce/2025/05/va-reinstates-mandatory-overtime-to-tackle-backlog-of-200000-benefits-claims/p

Thursday, March 6, 2025

2025 March News

 

Local

3/5: "El Paso County veterans & non-profit react to reports of 70,000 V.A. employees facing layoffs"- Right now the VA is massively understaffed and employees are already doing mandatory overtime to make up for the shortfall. These concerns are real and the government is showing that it does not care about those who fought for our country. https://krdo.com/news/2025/03/05/el-paso-county-veterans-non-profit-react-to-reports-of-70000-v-a-employees-facing-layoffs/

National

3/7: "Battered by Cuts and Firings, VA Employees Describe Serving Veterans Under 'Invisible Cloud of Dread'"- The ground level employees fully know how the VA is failing serving the veterans, but the VA leadership and Federal Government is not listening, pretending that they know what is best. https://www.military.com/daily-news/2025/03/07/battered-cuts-and-firings-va-employees-describe-serving-veterans-under-invisible-cloud-of-dread.html?amp

Wednesday, March 5, 2025

VA Hurting Veterans

The VA is going to lay off a vast amount of workers even though they are under staffed. Right now many workers in the VA are having to work mandatory overtime because they do not have enough staff. Veterans are being hurt because there is not enough staff as is to serve them. They have to wait months to years for services and this is impacting their health. Help protect veterans by reaching out to your government representatives and tell them to stop the VA reductions.

From: Humbles, Bernard <Bernard.Humbles@va.gov>
Sent: Wednesday, March 5, 2025 1:01 PM
To: VHAECH AFGE Union Members Local 2241 <VHAECHAFGEUnionMembersLocal2241@va.gov>; VBA AFGE Union Members Local 2241 <VBAAFGEUnionMembersLocal2241@va.gov>
Subject: RE: [EXTERNAL]

 

https://www.govexec.com/workforce/2025/03/va-plans-lay-many-83000-employees-year/403477/

VA plans to lay off as many as 83,000 employees this year.

A leaked memo released Tuesday called for VA to slash its workforce to 2019 levels that were in place before millions of veterans became newly eligible for care.

 

Bernard L Humbles JR. BS,BA, LAC,CSOC, PhD, US Army Retired
District NVAC District 13, Council 219 Representative, CO,  WY, UT, AZ & NM

President, AFGE Local 2241 & Local Legislative Political Coordinator

President, Colorado AFL-CIO Union Veterans Council

AFGE Affiliate Vice President, Colorado AFL-CIO Board/Council Member

VISN 19, Liaison to the AFGE National VA Council  

Denver Area Labor Federation Delegate/Board Member

Colorado Alliance Of Retired Americans/Board Member

Personal Email: afgehwa2241@outlook.com

AFGE National VA Council, Drug Testing Committee Chair

Colorado Notary Public

Office 720-723-6577 Cell 720-891-5084 or 720-937-4602   

Tuesday, October 22, 2024

Accessible/Adaptive Halloween Costumes 2024

Spooky season 2024 is in full swing and trying to find the perfect costume can be hard. It's even harder if you need an adaptive one for special needs/disability/mobility issues. I've been doing an adaptive costume post for a few years now, and this year I feel like there was a little bit of a stall. I say this because I didn't see hardly any new styles. It looked like mostly the hold overs from previous years.


https://www.disneystore.com/halloween-shop/costumes/adaptive-costumes/

It looked like Disney cut their offerings in half this year if not more. I hate to say it, but this does fall in line with how Disney also changed their ADA access rules at their parks to be more restrictive. Gone are the days where Disney supported children and their families let alone adults with disabilities that enjoy dressing up as their characters.

This was the first year I noticed places (Target) using visuals of adaptive costumes on social media (this was a screen shot from TikTok). This specific post was a slide show of different costumes, but this picture was of the first slide. Target has been the best at visually showing and giving voices to disability. Last year I noticed in store signage that showed adaptive marketing. I have also found products at Target that shows holiday goods with characters using adaptive medical equipment. For example there is the vampire in a wheel chair that you can see in some of my videos from this Halloween season and last Christmas I found a Santa in a wheelchair. Target has been the leader in showing these types of images and just making it a part of what they do.

At the same time this year access to these costumes were more limited (just for internet shopping). Last year I was able to find some wheelchair covers and wagon covers (that could be adapted to wheelchairs), but this year even the big Targets didn't have these products on shelves. Their online supply also seemed smaller with no new styles that stood out to me. Everything seemed to be last year's holdovers.


This was a new site I found this year (https://www.rollingbuddies.com/). This company sells different accessible products, but has a section for Halloween costumes. Some of the costumes looked really questionable in their quality, but the at least had a spread of options. They focused on wheelchair accessible costumes.

Example 1:
Lots of different emotions on this one. First, why would you make this costume? It does fall into cultural appropriation and the only possible thing I can think of why you would have this is if you were doing a costume of the Monkey King or Mulan. At the same time it dose show people from different cultural backgrounds within the picture while supporting accessibility. This is just an example of how complicated things can get when looking at things from a DEI lens. This is also one of the ones where I was questioning the quality of the product. Picture from: https://www.rollingbuddies.com/collections/halloween-costumes/products/asian-palace-wheelchair-costume-childs 
Everything on this site looks just cutouts for wheelchairs that have been printed on some type of poster board like thing. Nothing is licensed goods and the prices seem high when compared to licensed products or other products from other stores. I wouldn't recommend this place directly for the above reasons, but they do have some variety if you just want something different. 

https://www.halloweenexpress.com/costumes/adaptive-a1-560518+3435-1.fltr

This is one of the few sites where there seemed to be any new styles this year.
Picture From: https://www.halloweenexpress.com/costumes/adaptive-a1-560518+3435-1.fltr
Their selection also felt smaller when compared to past years.

Walmart
https://www.walmart.com/browse/adaptive-and-diy-halloween-costumes/c2hlbGZfaWQ6MjMwMzMzOQieie

They had many of the same costumes as the places listed above.
This was one of the more interesting costumes they had this year that I didn't see on the other sites. https://www.walmart.com/ip/Disguise-Boys-Minecraft-Pig-Wheelchair-Cover-Adaptive-Costume-One-Size-Fits-Most/3882141793?classType=VARIANT&selectedSellerId=737

Amazon
https://www.amazon.com/stores/DisguiseCostumes/AdaptiveCostumes_Themes/page/5421B702-BA97-484B-8708-4C39F3B82895

Even with a big company like Amazon that has the most random and diverse products, they had a super small selection of adaptive costumes. They actually had even less then some of the other stores when I expected them to have more.

https://www.partycity.ca/en/cat/halloween-costumes-decor/halloween-costumes-accessories/adaptive-costumes-DC1000367.html

For a place considered a party headquarters their selection this year was also super small, only having 8 options.

Spirit was the most disappointing. On their website when I searched for adaptive costumes only 1 costume popped up.

Additional Places to Look:

https://www.etsy.com/market/adaptive_halloween_costumes



Overall, this year was mostly disappointing in what adaptive costumes that were out there. Since I started to do these posts each year there had been slow increases in what could be found and some stores were actually starting to get competitive with each other on who could offer the most. This year there was a decrease in what could be found and many of the stores just had the same products. Shopping around may not bring you variety like it has in the past, but you may find the same costume for cheaper. I'm hoping that this is just a slump and that next year store will start offering more again. We'll just have to wait and see.

Sunday, October 6, 2024

2024 October News


10/1/24: "New FDA rule requires mammogram reports to include information about patient's breast density"- https://abc17news.com/news/health-news/2024/10/01/new-fda-rule-requires-mammogram-reports-to-include-information-about-patients-breast-density/ "Breast cancer rising among younger women at 'troubling' rate: report"- https://nypost.com/2024/10/01/lifestyle/breast-cancer-rising-among-younger-women-new-report/

10/5/24: "Study of 500,000 Medical Records Links Viruses With Alzheimer's Again and Again"- https://www.sciencealert.com/study-of-500000-medical-records-links-viruses-with-alzheimers-again-and-again

Monday, July 15, 2024

Breast Cancer: Learning Fast

When a family member got diagnosed with breast cancer I felt that I had to do a deep dive into the subject matter in order to help them navigate the situation. The first place I decided to look for information was in books. I know that info in books can be very dated, but it is usually good for basic information and you can carry it around with you and read on the go. For this article I'm going to highlight two different book experiences I had that in a way shows some of the extremes you can run into using books to do medical research.

Of the books I found, The Breast Cancer Survival Manual by John Link, was one of the best. It goes into a lot of detail and helped us to figure out which questions we should be asking the doctors. It also let us know when the doctors were withholding information from us. I tell people that they have to become experts on their medical conditions because both doctors and the American medical system can not be trusted. My specific example of this is that the doctors would only tell us the stage of cancer and not the type. It took me asking very pointed questions and talking about the specific types to get them to tell us the type of breast cancer she had. Knowing the specific type makes a big difference in the options you have and by doctors withholding this information they block you from knowing what your options are. This book was pivotal in helping me build specific questions and hold the doctors accountable for what treatment options we had. I would highly recommend this book to both people diagnosed with cancer and their families. I also found this at the local library.

Taking Charge of Breast Cancer by Julia Eriksen was less then helpful. During this time I had access to a college library. To be specific the Auraria Campus library that serves 3 different colleges including students in different medical programs. For a library that supports medical students I found their medical and health books really lacking compared to the public library. I thought that this would have been the reverse, but was super disappointed. This was actually the best book on breast cancer that they had. It mostly was just a collection of different peoples' experiences, which is great to know how varied the breast cancer journey experience can be, but it didn't really have any useful information in it. It was too personal and not educational enough. When you are going through the breast cancer experience you don't have a lot of time to educate yourself, and reading this book was a waste of time when compared to other books out there that had information that you could put into instant use. I would say don't waste your time on this book, there are better options out there to help you in your breast cancer journey.

These two books show the differences in quality of the books you can find on a subject and how where you can find quality books on a subject can be surprising. I would have thought that a college would have held the more useful and information packed books, but in this case my local library was much more helpful. At the same time I felt that both locations had very few books on a subject that impacts the lives of so many people. The breast cancer center had posters up where they talked about 1 in 8 women will get breast cancer. That's really high. Then even if you don't get it, more then likely a friend or family member will get it. Breast cancer is very impactful to our society and I feel that there needs to be easier access to more information on it in general. For my own learning experience I had to focus more on medical journals and peer reviewed articles. Which for the general population, understanding the language alone used in those type of resources makes the information out of reach for them. I'm lucky because of my background in science and medicine, but for most the information is very much gate kept by the medical profession. There are a few basic places people can turn, like Web MD, but you need to be careful of what you find on the web. As always I recommend doing research on not only where your info comes from, but on the authors of any books or articles you turn to.

I will try to share more of my experiences of the breast cancer journey as I can. It is a lot of appointments and then also trying to support someone on the emotional path can also eat up a lot of time. I wish all who have to deal with this in any way the best of luck.

Picture 1 From: https://www.goodreads.com/book/show/33574220-the-breast-cancer-survival-manual
Picture 2 From: https://www.goodreads.com/book/show/2190850.Taking_Charge_of_Breast_Cancer

Accessible Halloween Costumes 2026

  This year in stores was a total desert of accessible costumes. I couldn't even find wheel covers or the wagon covers that you could mo...